our journey

Tomorrow is Purple Day!

Tomorrow is Purple Day, a day to come together for #EpilepsyAwareness Did you know that 1 in 26 people will develop epilepsy in their lifetime? It’s more common than most...

Tomorrow is Purple Day!

Tomorrow is Purple Day, a day to come together for #EpilepsyAwareness Did you know that 1 in 26 people will develop epilepsy in their lifetime? It’s more common than most...

First Annual Strides for Strength 5k!

We are so so so THRILLED to share…. The First Annual Strides for Strength 5k is happening this summer during the Sheffield Festival!! June 28th, 2025! Join us for this...

First Annual Strides for Strength 5k!

We are so so so THRILLED to share…. The First Annual Strides for Strength 5k is happening this summer during the Sheffield Festival!! June 28th, 2025! Join us for this...

Refractory Epilepsy

Refractory Epilepsy

Next week, we begin another big transition in Hudson’s epilepsy journey. This will be the fifth medication we’ve tried to help control his seizures. For a short time, he’ll be...

Refractory Epilepsy

Next week, we begin another big transition in Hudson’s epilepsy journey. This will be the fifth medication we’ve tried to help control his seizures. For a short time, he’ll be...

Neurology & Cardiology Update

Neurology & Cardiology Update

We’ve had a big couple of weeks for Hudson with two major appointments in the last week: Neurology and Cardiology. On the Neurology side, we were reminded that Hudson's current...

Neurology & Cardiology Update

We’ve had a big couple of weeks for Hudson with two major appointments in the last week: Neurology and Cardiology. On the Neurology side, we were reminded that Hudson's current...

Rare Disease Day!

Rare Disease Day!

Rare Disease Day holds a powerful and personal meaning for our family—a day to shine a light on the rare, the unheard, and the uniquely resilient. Hudson’s story began to...

Rare Disease Day!

Rare Disease Day holds a powerful and personal meaning for our family—a day to shine a light on the rare, the unheard, and the uniquely resilient. Hudson’s story began to...

The Tug Between Hope & Heartache

When epilepsy enters your family’s story, especially refractory epilepsy, the days can feel like a constant tug between hope and heartache, faith and fear, strength and surrender. For our family,...

The Tug Between Hope & Heartache

When epilepsy enters your family’s story, especially refractory epilepsy, the days can feel like a constant tug between hope and heartache, faith and fear, strength and surrender. For our family,...